Support for children and young people with life-shortening conditions

Summary

It is estimated that more than 40,000 children (0–19 years) in England have a life-limiting or life-threatening condition. The charity Together for Short Lives has called for a more integrated commissioning approach from CCGs, NHS England and local authorities. Because hospices generally receive funding from a variety of sources, including charitable donations, provision can vary. In 2015, a survey carried out by Together for Short Lives and Hospice UK found that statutory funding for children’s and adult hospices was patchy and inconsistent.